4-Year-Old with Rare Brain Disease Needs a Wheelchair Van

Patch has partnered with GoFundMe and is highlighting worthy campaigns in local communities.

Source: GoFundMe
Source: GoFundMe
The mother of a 4-year-old Exeter girl who suffers from a rare brain disease is seeking financial assistance to help buy her a wheelchair van.

Sherri Duda is asking for donations to help purchase a wheelchair van for her daughter Lexy, who has Alexander disease, according to the GoFundMe.com page. She is 1 of just 50 children living with the disease in the entire world. It is a rare progressive and terminal genetic disease. Patch has partnered with GoFundMe and is helping to highlight worthy campaigns in local communities.

Since Dec. 13, 14 people have donated $900. The goal is $50,000.

From the page:

Lexy is an amazing 4 year old girl with Alexander's disease, a leukodystrophy. Alexander's disease is a very rare genetic disease affecting the protective covering of the nerve endings of the brain. It is progressive and terminal. She is 1 of 50 children living with this disease in the entire world. Some of her challenges include Cerebral palsy, epilepsy, very low muscle tone, trouble swallowing(requires a g-tube) & a global developmental delay. She is unable to walk or communicate with words. She requires a wheelchair for mobility. Lexy has numerous medical and therapeutic appointments weekly. Mommy has a bad back and is currently lifting Lexy as well as her wheelchair, in and out of their high mileage minivan. (ouch!) Her wheelchair takes up two seats as it cannot be folded with all of her supports in place. This make it impossible for this family of 6 to travel anywhere all together. (Lexy being the baby sister of 3 brothers, you can see why she is the princess!) Lexy and her family are in desperate need of a wheelchair van. Please consider helping to get this amazing little girl what she needs and deserves!Despite having gone through more in her 4 years than most have in a lifetime, she always has a heartwarming smile! Thank you! You can stay updated on Lexy by "liking" her facebook page "love for lexy" thank you for helping! 


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